Monday, September 12, 2016

So my father died, and I was just thinking....

I got something HUGE out of sitting in the silence just now.


I was on my deck listening to the breeze, wind chimes, and my wonderful miniature wind gong.  My father died a couple of days ago.  I was taking a breather from an emotional few weeks and an emotional data dump into another solar system (well, that's what it felt like) that I just released on Facebook a couple hours earlier.  My dear friend, Moe, sent me a note of encouragement about my Facebook post (data dump) and my previous blog post ("The Dark Soul and Little Spitfire"), and I stated something to him about how many of my blog posts have a distinct topic, but are vague or esoteric in nature.  That is by design -- no accident, because it is kind of like a song.  You know how a song means different things to different people?  I might hear a song one way, and you hear it differently, or it has a different meaning for me than you.  That is the reason I am vague and casual in my blog posts many times.  I want the topic to be clear, but the parameters to be set by the reader.  This way it can have many meanings, and the meaning/s can even change over time as our thinking and experiences evolve as well.

I think my style is effective for the purposes I mentioned above.  However, here's the meat.  What I got while sitting in the silence was how extremely ineffective it has been for me in my real, in-living-color life.  I am a natural introvert, and a reluctantly-learned extrovert; so this is a tragic, perfect fit.  There are times in life when diplomacy is most certainly called for, and a lack of it can cause more harm than good.  There are times when tact and/or caution are necessary.  But I see how tip-toeing around myself in order to avoid injury to others down my path of personal healing has only prolonged and deepened the injuries.  I am not saying one should just bulldoze over people and their feelings, but I AM saying that I have forgotten who I am to myself.  I have forgotten to treat myself like the one and only me that I will ever, ever, EVER have.  Why should I not treat myself the way I try to treat others whom I revere, and the way that I advise them to treat themselves?  So rather than opening myself up to personal things, I am... VAGUE.  And if I want to get deep with it, that's not really an honest way of being.

Now, don't get me wrong.  I can talk and TALK about all kinds of things.  I have been told more than a few times that I talk too much!  But if you're one to really pay attention, you would notice that next to none or absolutely ZERO of what I was talking about had anything very personal or vulnerable about me in it.  If you feel this is not true about me, then consider yourself one of the chosen extreme few.  That's not bragging, by the way, it's part of today's epiphany.

I also get that my vague style of communicating personal things is a protection.  I am sure as I am Irish that it is my own training.  All the way to his death, if you didn't agree with my father, you were going to pay.  So, I mastered "vague."  Hell, I JUST said to my husband THIS very morning after I posted my data dump, "I will probably never fully trust anyone." <blink> Wow. Way to go...  Team... ➟➟ of ONE!  How convenient for someone who wants to stay stuck in the beige realm.  (Is that taupe or ecru?  No one really knows.)

I will remember to revere 
myself,
and take care of 
my one and
only 
ME! 
Finally, what I got in the silence today is that by being vague about how I feel, or stepping around things, as my cousin and I talked about, rather than going through them, I'm setting myself and others up to be nuked or data dumped on -- like today.  I have lots of feelings and words just swarming around dying to get out!  So if I pressure cook them without releasing the valve at the appropriate time, "She's gonna blow, Captain!"  What I said in my post on Facebook, I meant.  My regret is that I didn't say it all sooner and handle it under the category of self-care rather than anger and hurt.

An Aside:  I just took a break from writing this blog post to read some of  the comments on Facebook.  After I posted my blast, I purposely ignored it for a while.  I was fully expecting some cricket noises, maybe a few thumbs-up, and possibly some negative returns.  But I am in tears right now instead at the support I have received.  This is what happens when you put yourself on an island in your mind instead of sharing.  You begin to think you are alone in your feelings and experiences.  I am touched by the kind and caring comments, as well as some private messages, text messages, and phone calls I have received in response.  I hate to sound cliché, but my mind is just blown.  It is time for me to do the work of someone who is ready to move forward from where I've been stuck.

I am sad.  I am tired.  My head hurts.  I feel a little less angry today, but I see I have a ways to go, and I fully understand it is totally up to me to find my way to peace.  This is a journey I have to take alone.  I don't mean that in that lonely, sad way -- like "I don't want anyone around" way, or "There is no one to help me" lugubrious way.  It just is what it is!  Some lessons and transformation are truly and simply a journey for one.

So, what am I going to do about this revelation?  What am I going to do next?  I'm going to buy more wind chimes, that's for sure.  Those things are MAGIC... like Tinkerbell!  For sure I need to be responsible.  What that looks like is no longer allowing people to abuse my time, which includes family gossip and anything or anyone that just doesn't feel good or right, or anything that puts me in the position of aligning myself with someone that consistently and purposely makes others feel bad.  After that... I need to stay present and conscious, and I'll just keep breathing (both directions), learning, and sharing.  

Stay with me.  I'm sure my ride is not over.

ღ Love yourself.

Little Spitfire
I would like to go back
and hug her so tight!
Debora Lynn

P.S.  
"Follow" my blog if you want to keep up with me (button on the far right side).  Some of my posts are going to change tone.  When it makes sense, you're going to see more clearly who I'm writing about. 


Sunday, September 11, 2016

The Dark Soul and Little Spitfire

A story that starts over and over again to have a happy ending
  
Allegory
Once upon a time, there was an evil man with an infectious smile and a big sense of humor -- but a dark soul, he was.  Nothing good about this man was genuine.  He smiled on the outside, but his insides were murky and sour.  He covered it up by putting on a gregarious and charitable act for all to see, but in the dark is where he crafted his masterpiece of deceit and lies.  His energy was strongest in the dark where no one could see and where he could keep his secrets hidden.  In the dark was where he lured his victims, where he would devour them with enticements of money and favors that they could never repay fully, except with the defeat and surrender of their consciences.  Even then, this Dark Soul would not be done with you.  Once you bowed to him, you were eternally damned with only one way out.  That way was a rarely chosen one which forced the affected to leave all behind.  His force was so strong, and so dense was his canvas of lies, that only a scant few could see out.  Some who saw through his darkness continued to pander to him anyway out of fear.  If you walked through the blinding exit, your true essence would be forgotten by all that you knew and loved, eclipsed by the grimy portrait of lies painted by the Dark Soul that sucked the good out of everything he touched.  He breathed in what goodness he could find and regurgitated stench; and when he breathed in stench, he regurgitated his own demons that were always someone else’s fault.

History
There was a little soul, a Little Spitfire born to the Dark Soul and a Family of Light.  She was innocent to the inner workings of the dark side.  But as she matured she began to come into her own mind, and she began to see the contrast between the Dark Soul and the Family of Light.  She also began to come into her own awareness about the world around her -- the world she was immersed in.  This was the corner the Dark Soul missed when he brought the little soul into the world.  He misjudged his own powers of influence and mistakenly thought that he was stronger than all else.  After all, the evidence was there that he was the great influencer, was it not?   But indeed he had not learned that the Light is always greater than darkness; he had born his daughter into the Family of Light as well as his own, and he had immersed his daughter into a world full of life, colorful surroundings, and cultures.  As his darkness grew, so did the little soul’s awareness.  Her immediate surroundings became intolerable, as he not only weighed on her illuminated conscience, but also weighed heavy on her little heart.  The Dark Soul’s abuse was growing in the dark that was beginning to take over.  Then one day the Light Protector decided it had become too dark for anyone to grow, and gave the Little Spitfire the option to stay where she thought she knew her surroundings, or to come with her and live where only Light was allowed.  Having had enough of the stench of the darkness, the 13 year old Little Spitfire chose to go with the Light Protector.  She had no idea that nearly an entire family would turn away from her because of her choice to grow -- even her grandparents.

As the years passed, Little Spitfire and Light Protector grew and learned together.  The Dark Soul tormented them whenever and wherever he could for years.  He ruined vehicles, stole jewelry, would call endlessly, spoke horrible language, and stole money from Little Spitfire.  He even enlisted other family members, childhood friends of Little Spitfire, and friends of Light Protector to keep tabs on them for him.  He relied on their gossip and willingly and relentlessly spread untruths about them to his own family and friends.  The Dark Soul even entered Little Spitfire’s school one day shouting epithets at her teachers and administrators to coerce them to have her removed.  Fortunately, it only caused them to frown upon him and feel bad for his embarrassed Little Spitfire, and he was banished from the grounds.  He did anything he could to spread the darkness.  He knew he couldn’t survive in the Light.  Every nasty, big or little thing he did to them, he would turn into a different story to his comrades and family.  His stories were so big and he held so much power, that nearly 40 years later these stories are still believed as the truth, and have been retold and spread by many.  Interestingly enough, not one word has ever been said directly by any of these players to the Little Spitfire or the Light Protector directly about any of these stories.  One can only surmise that it must be easier to believe a lie than to find out the hard truth about everything you thought you knew.

Several years passed, and the Dark Soul was only heard from intermittently with an occasional drive-by, or through packages of old pictures or knick-knacks being left anonymously on the Light Protector’s doorstep.  Spitfire had grown into her own life by now, but was living in the darkness of the trauma left behind from him.  For a while, it seemed that his darkness had followed her and was going to live on through her.  She didn’t realize it until she made a lot of mistakes, some which hurt other people, but most hurt her own life.  Spitfire had an awakening one day when the Light shone on her just right, and she realized that she had little souls of her own that were being affected by the Dark Soul, though his physical presence was absent.  She was at once angrier than she had ever been in her life, but quickly realized that this anger had been the downfall all along -- that it had been the remaining shade casting out the Light trying so hard to pull her through for so many years.  In the realization alone, the warmth from the Light began to spread, and little by little, more became illuminated.   The most important thing that showed up for Spitfire was herself, and the realization that she held all the power for herself and her little souls all along.  She had just forgotten in the darkness to open her eyes.

The next chapter in Spitfire’s life was challenging as she learned a new way of thinking and teaching her little souls and for herself.  She had to learn to love the forgotten life she hated in order to have Light everywhere.  Darkness can be like an addiction, and can suck you back in when you aren’t paying attention.  So Spitfire tried very hard to be aware of her surroundings at all times.  Again, she made lots of mistakes, but always brushed herself off and vowed to never make the same mistake twice.  Her biggest wish was for her little souls to grow in the Light and not have to know the darkness that she did.  She worked diligently to cultivate the characteristics in them that the Dark Soul would never have taught -- diplomacy, honesty, sincerity, tenacity, decency, impartiality, frankness, honor, unconditional love -- whatever she felt were crucial to a life of integrity and courage.

By now, Spitfire’s little souls were on their own, and as some of us do when we feel we have forgiven those in dark places, we think we are strong enough to go back and visit.  We think we have risen above and feel that somehow we “should” out of a forgiving spirit.  And so it goes, that we learn all the while we live.  At least, that’s the point of it anyway.  A few of us choose to ignore the lessons and are doomed to repeat them.  So Spitfire went back for a visit, and she stayed for a while until once again, the Dark Soul began casting his shadows upon her life.  She realized that he was one of those that would die having never learned, and would take with him his darkness to the very end.  And sadly, those that would mourn for him would never know the true Light as long as they remained under his cloak of darkness and refused to even peer into the Light.  Spitfire learned that forgiveness does not mean you need to revisit darkness to show the strength of forgiveness.  The strength of forgiveness is shown in the manner in which we live our lives.  It is in the proof that we do not repeat the mistakes from which we turned.  The lesson is proven when we realize that those scars caused in the darkness are ours forever, but not to pass down and share.  They are only bookmarks, or reminders, like those pushpins on a map.  The Light is shown when we no longer pretend to or show reverence for the darkness that caused the scars, and refuse to lend credence and participation to the Dark Soul’s insidious ego any longer. 

Today
Spitfire has come to realize that even in death, the Dark Soul will live on through those that carry out his legacy of darkness, and it will continue to be repeated until someone says, “Enough!” and chooses the Light instead.  She chose a different world for herself and for her little souls so that eventually his darkness will end.  Light always wins over darkness, but it is a conscious choice.  It was the best choice, but it was not an easy path.  She will remain forever grateful for her Family of Light that showed her a dichotomy in her bubble.  She remains strong in her resolve, but unsure if she would have recognized that it was the Light shining on her without them.  Her early training in the darkness has caused a ripple that is a constant struggle against her own worst self, but the Light shines so bright on her awareness that she can never become unconscious again.  Sometimes it's up to the beholder to give broken things a purpose.

Lessons continue, and darkness is always waiting.  Spitfire will always keep her head up so she can see, and protect her own to the end.  She knows about the cycle.  It is illuminated now and cannot be unseen.  She thinks to herself how she would have liked to have learned these lessons another way, but she understands that this must have been what it took to change the course for her little souls and her to have a different life.

"Goodbye, Dark Soul.  You’ll have to leave without me."


Sometimes it's up to the beholder
to give broken things a purpose.
Light always wins.

Monday, August 15, 2016

Reject The Summons To A False Dilemma

 "If you're not with me, then you're against me!" 


We take sides in family, friendships, politics, the workplace, and more!  Often, we even take pride and puff out our chests at the divide of which we are at the root, when often we probably should be hiding our faces at the damage we have done – often irreparable.  Sometimes we get so wound up in it that we can’t get out, and we collect other accomplices and victims in our ball of twine as we wind up to make sure we are not in it alone.  Then we assume that those who won't join us are therefore on the opposing side.  Is it worth it?  Does it make us better individuals or life better when we support another person, group, idea, etc., so vehemently that relationships fall into a cavern of uncertainty or spiral down into oblivion?  Did we actually provide a measurable service for anyone?  Or, was it all done for a power-feed for our own ego or other personal gain?

Sure, sometimes we find we must let someone or something go (bad match, matters of safety, etc.), but that is not what I am talking about.  So as not to justify butting in where we don’t belong, or so obtrusively inserting ourselves where we aren’t needed, I am specifically talking about occasions and instances where we are an outside party and  have an opportunity to take a step back and “assist” only if asked.  I am talking about times where a difference could actually be made by our absence and by keeping our mouths closed – where showing our support would look more like keeping our personal thoughts in our heads vs. putting them into someone else’s space.  I am also talking about how allowing the outcome to be whatever it is going to be without interjecting or injecting our personal selves into it where matters do not require our attendance, literally or figuratively.

 There is always more... or none

 Truth – this is hard to do sometimes!  It is so easy to get caught up, especially if it involves someone/something/a group that we love or despise.  We want to take sides!  Sometimes we think we have to take sides.  But do we have to?  Instead of jumping right in, how different might the outcome be if we first took some time to assess the need for us to insert ourselves in some way, and then just opted out instead?  Or in the case of family and friends, what if we just waited to be asked for assistance or advice, and then still only gave what was actually needed vs. what we personally felt?  We might stop here to consider that when we think we are helping someone with our opinions that we might actually be putting that person in an uncomfortable position with us!  They might really love us so much that they won’t say anything in order to avoid offending us.  It happens!  From there may come avoidance, distrust, dishonesty… you get the picture.  Or, you may just get an earful, and then what?  Once you have inserted yourself as someone’s steadfast ally, what will you do if they change their mind and go a different direction than what you want for them?  How are you now going to react and respond with their once-opposing side, or yet another new choice?


What I am suggesting here is to think way ahead before you jump in feet first, eyes closed, and mouth open if you are considering taking sides with someone or on something.  Once you choose sides you are dividing more than just the two entities in question.  Your energy in the matter will cause a wake.  There is more than one way to show your love and commitment to your person, cause, or group, and it does not always have to mean making the “other side” appear wrong.  Do not expect everyone to jump on board with you if you choose to take sides; and when someone chooses not to, do not fall for the false dilemma that just because they aren’t “with you” that they are “against you.”  Do not actualize an enemy or opponent where there was none.  They may simply realize they have other options, as do you.


 Here's an idea! 



Monday, July 18, 2016

Whose Side Are You On?

It is hard to tell the difference sometimes, isn't it?  Often it is very clear who is the one in the wrong, but many other times it is hard to differentiate.  What about those times when our loyalties to a person or a group cloud our judgments?  Or maybe our judgments aren't clouded so much as we are just too afraid of rocking the boat to jump ship, or to just draw the line and say "enough is enough."  A lot of times we just don't take the time to step back and even listen or try to understand the other person or group.  We "love" and are attached to our own understanding so much that we don't even take a second thought that there might be something more, something else, something beyond our personal experiences and comprehensions.  That is not LOVE.  Now I am not saying that you do not love that person, that entity, that group, etc., but if you can't love them all, then truly, it is incomplete.  It is one thing to show support, but it is completely another when the support is actually hateful competition.  

Love is ALL-encompassing, and leaves no one out.  Love does not discriminate or differentiate, and it is always complete.  It is static, yet fluid at the same time.  It is everywhere and never absent.  It is there for the asking and the taking, yet is best when given.  It is a verb and a noun, and you can give it away and even give it to yourself (highly recommended).  But we pick and choose... why?

We show favor to one family member, while we backbite and gossip about another.  We condemn one group of people trying to survive over another.  We close our minds and hearts to someone who doesn't look like us or think like us, and the whole time we are claiming love for the one we chose.  It is incomplete.  Get out of the way.

Do I accomplish LOVE all the time?  No. I understand that I'm in its way sometimes.  When are you in the way?  When are you blocking it or preventing it for someone else?  I also understand that if I purposely block it for someone else, that I'm blocking channels somewhere for myself as well.  Be careful about the love you profess for someone, something, or a group.  If your "love" is a clever disguise as hate or discord, you may fool some people, but you will not fool LOVE.  If you are clouding someone else with discord, realize that you are doing it to yourself as well.  Do yourself a favor and get out of the way.

I am a work in progress, and continually working on this.  I know a few people that I think are so good at showing and being LOVE all the time, and when they aren't, they are able to quickly redirect.  That is the side I want to be on and keep practicing.  I hope that is the side you will choose.  Think about it.  Whose side are you on?

In LOVE,

Debora Lynn






Tuesday, April 19, 2016

Our Assignment

Do not lose faith in humankind. Do not break the chain that connects us.  Do not give in to the bad things that happen - because bad things do happen. Do not let the bad things chip away at your humanity. You are above that, and that is what bad things are for. Do not try to understand something that cannot be understood. Our assignment is to keep loving each other. That is all.


Wednesday, March 30, 2016

Sometimes "Goodbye" Takes a Really Long Time

I hope the people that love me want to be around me. And I hope the reason they want to be around me is simply because they choose to for no other reason than they like who I am, or maybe because it is just easy to. I wouldn’t want a life where people cling to me because I have something to hold over their heads, or because they are too afraid of me for some reason, or simply out of nothing more than perceived obligation.
As I write this, my biological father is dying  --  possibly in his last few days. I will not go see him. This is not an act of defiance, revenge, meanness, or some measure of something like any of that. I realize it may seem like it to some, and I am fine with that. Mostly. I suppose they are entitled to their uninformed opinions. I no longer have anything to prove or figure out. I am not going because my father blew it, and he blew it really big, and more than once. I said my final goodbye to him a few years ago, and I was fully aware at the time of all that meant and encompassed. I still feel I am, but I am realistic enough to understand that full awareness won’t come until he is literally gone. So for now, I feel complete.
am steeped in my thoughts, however. I find myself drenched in my memories of my angry, pissed off, self-righteous twenties; swirling around in my bewildered, self-discovering, transitional thirties; reminiscing and touching my transformational, self-loving, strengthened, liberating forties. But I am not really wanting to be here today -- 51. At once, I feel I wouldn’t change any of it, but am left wondering how I could have changed some of it so that I could have wanted to be with my father. The word “Dad” when I refer to him no longer comfortably, naturally rolls off my tongue. His other children, my half siblings, made the trek from the East Coast to be with him. (We are in California.) They have somehow remained in his good graces. I shudder to think what parts of their souls they had to give up to remain there. Or perhaps they are cut from the same cloth. Perhaps it is a combination. It is just conjecture on my part, and I cannot honestly say that I know. Whatever the case, what I do know for a fact is that in order to remain in step with people, we have to be in some sort of agreement with them, spoken or not.
What I am left with is that it did not have to be this way, and that is the disappointing part. That burn is cooled by knowing there was nothing more that I could do -- well, nothing more that I could do without turning into someone I wouldn’t like. I won’t sell myself short to assuage someone else’s control issues, or perpetuate their appetite for verbal cruelty, or live into someone else’s lies about who they think I am or should be. I will not change myself, injure my soul, in order to live into someone else’s needs for power. I will not ever succumb to lies told about me to help someone else look better and more powerful. I simply will not trek with that perpetuating party. So what I am left with at the end of the day, every day, is just myself. Me. And I have been okay with this for a very long time. The lie we tell ourselves is that we are left with more than that, and we try really hard for it to be more than that. When my father leaves this realm, he is going by himself. For all of the controlling and manipulating he has done for so long, and no matter how many might be by his bedside, he will be alone when he goes. That is the way of it.
I think I will always have this feeling of “it didn't have to be this way” and “what an incredible waste of time.” It was not always this way between my father and me. I was “Daddy’s Little Girl” for sure --  the apple of his eye. I thought he was so handsome, so strong, so smart, so kind  -- and then I got older and developed a mind of my own. I began to see things for myself, to hear things and understand what I was hearing from a more developed awareness. I grew my own voice, not of my mother’s or father’s teachings, but from my own thoughts. This was the beginning of a new relationship with my father, and it was one he would never accept. It was hard at first because I could not understand how someone so outspoken refused to understand why I would be so outspoken. Didn’t he see that he taught me to be this way? Wow, the irony! There is so much more to this of course, but it is pointless. Perhaps it will show up in another writing one day. So here we are.
Had I to go back and do it all over again though, I do not see it ending any differently. I can only move on and find the lesson. I do not subscribe to “everything happens for a reason.” I used to believe that, and then some terrible things happened, and I realized that a God of love would not cause terrible things to happen. The God of love that I believe in deals in “NOW.” So I understand that it is up to me to find the lessons for myself. Some are obvious immediately, and some come years later. But I will always be open, and I will always seek out the lesson even if it means creating one.
What I have learned in my 30-year (so far) inquiry is that I have to let people be who they are, just as they are. If I have something I want to teach or share, teach or share it gently, and only when it comes from a place of love --  never power or control. Some things I have learned from my father are because of him, and others are in spite of him. Others I learned from my mother in contrast. I have learned to use my voice, but I had to teach (and am still teaching) myself how to use it constructively and without force. I have learned to let my children be exactly who they are, even when I do not approve or agree. That leaves me free to just love them. I have learned that love does not have a price or a bounty. I have learned that it is my responsibility to show up for my children, no matter how old they are. I have learned that I cannot actually control others, and that I actually do not want to control anyone else. I have learned that I have no rights or responsibility over anyone’s happiness but my own. And… sometimes “goodbye” takes a really long time. 


Lastly, what I have learned is:

In our kitchen as a reminder. :)

and nothing more -- ever.

What I want to leave you with is hope. I want the readers to know, because it may come across a certain way in a brief blog post that separation from my father was easy or perhaps a quick process, or like I just said, “F_ it,” and walked away one day. It was none of those, and neither was it ever the desired outcome. It was simply necessary. I suspect you may be thinking, “Where is the hope in that?” It is right where it has always been and has always belonged. It is within ME, just as for you it would be within. When we lose hope, we perpetuate the family secrets, the family lies, tragedies, violence, abuses, etc. When we realize the hope is within, as individuals, as separate entities, we begin to do life on our own terms. This is how hope lives, and this is how we change future family dynamics. Go love your people without terms, without contract, without force. You will get all that back exponentially.
Do you, but with love and kindness, and no other intention. It all works out without all the unnecessary pain and struggling.  The clue to when you are on the wrong path is when you are wearing yourself out (and possibly the people around you)!
Not nearly “The End.”
Debora Lynn


Saturday, March 19, 2016

An Open Letter to Other Healthy People

Be careful who you judge.  Be careful how you judge.  Tides always turn.


Dear Other Healthy People,

I live with a mixed bag of autoimmune diseases, and have for many decades.  They are what we "spoonies" call "invisible illnesses."  In other words, most often we look just fine on the outside, but we feel like holy hell most of the time.  Because of this, people like me are misunderstood a lot.  We lose relationships because of it even.  We are thought to be lazy, disingenuous, feigning, or just outright lying about our symptoms and how shitty we feel.  We are thought to "use" our diagnoses to get out of social situations or work and chores. It's hard to even get physicians and other healthcare personnel to take us seriously, and more often than not, it takes many years to even get a diagnosis because of it.  So the lack of understanding, empathy, knowledge, and just general trust from loved ones and healthcare personnel is not only extremely frustrating, it's also dangerous.

Please don't tell me you understand when you clearly do not, and let's be honest, cannot. If you think it makes you mad when I tell you not to say this, imagine how angry it make ME when YOU say it!  There isn't much more aggravating than someone who tells me they understand, then turns around and is a perfect example of someone who clearly does not.  Just don't say it.  If you feel like you need to say something, search your heart first, or just don't say anything at all.  

If you love someone with an invisible illness, then love them just as they are.  It isn't going to change.  It isn't going to go away.  This is what you have.  This is what we have.  We may have good days, and we may be fortunate enough to go even very long periods feeling great!  But don't be a toxic cloud when we don't feel good and we aren't able to accomplish all that we'd like, or maybe even all that we'd promised. We are already tired of feeling guilty about what we have no control over.  Believe me, no one -- NO ONE -- beats themselves up more about not being able to do all that they want to do more than we do.  NO ONE!  So we surely don't need you spreading your nasty little comments and attitude around as well.  That serves nothing but your own ego about how much greater you must be, and how angry you obviously are that things are the way they are.  Thanks for absolutely nothing.

Have you ever thought about how hard it is to be a healthy, active, strong person one day, and then not be able to move the next, be in constant pain, and then have that rarely ever change?  In our heads, we are still those healthy, vibrant people -- just dying to get out and be who we really are.  It's a cruel joke.  It's physically and emotionally painful.  So take your disdainful looks, your snide comments, and your whispers behind our backs, and shove 'em! And now pray that you don't end up like this, because God knows that many of us have prayed for you to end up just like this so you can know, if even for a day, what this is like -- to be stuck in a body that refuses to cooperate, that is at war with itself, that inflicts constant pain and confusion, organ failures, threatened with early demise, and refuses to ever be replenished by any amount of rest and sleep.  I won't even get into the horrible medications and treatments we must face.  

None of this is to have anyone feel sorry for me or the rest of us.  It's simply to say, "Get a grip!" to the rest of you.  Either be all in with us, or get the hell out.  Seriously.  This is exactly how I feel.  We have enough to deal with to try to stay above ground and have a smile every day without having to deal with people that don't even deserve to be in our lives in the first place. So now you can't say you don't know.

If you have a relationship with me, the truth is you don't know what you're going to get from day to day, and even hour to hour.  I'm sorry, and I mean that.  It's hard, and I know it.  I also know I'm worth it, and so are the few who have stuck with me.  

Oh... I almost forgot.  We don't expect you to understand it all.  Just believe us and love us anyway.

Yours with Tenacity,
A Spoony named Debora Lynn